Celiac Mama's Blog

Raising a toddler with Celiac Disease

Back to blogging! March 30, 2011

Filed under: Health Concerns,Introduction — celiacmama @ 7:53 am
Tags: ,

I have been on a break from blogging and tweeting, but have decided to get back on the ball. Somehow in the past year, we have learned a ton about Celiac disease, gluten free diets, and everything associated with them. I also am back to tweeting! If you would like to follow, go here: CeliacMama. I remember when my little girl was first diagnosed with Celiac disease at almost 12 months, it seemed so daunting. Now, figuring out what she can eat is second nature! And, she has gained over 9 lbs in this one year of gluten free living. She was at the 70th percentile for weight at 6 months and dropped to less than the 10th percentile from about one year to 15 months and now at 2 years old is back up to the 50th percentile! It is so rewarding to see that eating gluten free really does work for my Toddler Celiac. And, who can resist chubby cheeks??

Unfortunately, she has some other health issues going on as well. I mentioned in a previous post about leg fractures (she has now had two), but she also has a pretty significant speech delay and gross motor delay. And, she has a referral to a neurologist for tremors/shakes. I feel like the poor girl can’t get a break.

Well, I look forward to connecting with other people with a gluten intolerance or Celiac disease. I am by no means an expert, but I can give some tips on gluten free toddlers!

 

Fractures/breaking bones and Celiac Disease

Filed under: Health Concerns,Research — celiacmama @ 7:44 am
Tags: ,

My toddler celiac has fractured her leg for the second time, so I have started doing investigation on the correlation between fractures and celiac disease. (Have I mentioned that I am a scientist myself? Sure, I study the weather, but the need to research is in my blood.) Unfortunately, it looks like there is a correlation.  In the 2007 article, Celiac Disease and Risk of Associated Bone Fractures, it says that children (and adults) with Celiac disease are significantly more likely to fracture bones for up to 20 years after diagnosis. It looks like these results were again confirmed in 2011. I am not entirely sure how to treat this since she is already getting a liquid multivitamin and gets plenty of calcium. Any tips?

 

Taxes and Celiacs April 14, 2010

Filed under: Uncategorized — celiacmama @ 7:21 pm

An article I want to keep for tax time!

How to Get Tax Deductions for Food

 

Short stature of celiac disease children linked with pituitary abnormality April 13, 2010

Filed under: Research — celiacmama @ 2:00 am

News Article

By Anita Wilkinson

26 March 2010

Am J Gastroenterol 2010; 105: 691-696

MedWire News: Poor growth in children with celiac disease (CD) could relate to the pituitary gland, Italian study findings suggest.

Children newly diagnosed with CD were more likely to be positive for anti-pituitary antibodies (APA) than those without the disease.

Testing positive for APA correlated with restricted height, and the researchers speculate this is mediated by a reduction in insulin growth factor (IGF)-1.

The possible autoimmune involvement of the pituitary gland in patients with CD has only been demonstrated in a few patients on a gluten-free diet, say Maurizio Delvecchio, from IRCCS Casa Sollievo della Sofferenza in San Giovanni Rotondo, and colleagues.

They recruited 119 patients aged up to 16 years who had CD and attended an inpatient clinic, and compared them with 98 gender- and age-matched control individuals.

APA, all of class IgG, were detected in 50 (42.0%) patients, 15 with high titer defined as detectable at a dilution of at least one in 16, and 35 with low titer detectable at less than one in eight dilution.

This compared with detectable low titer APA in just two controls, the authors report in the American Journal of Gastroenterology.

IGF-1 levels were significantly higher in patients negative for APA than in those with either a low or high titer. APA patients with a high titer were also shorter than in those testing APA negative.

Height was positively correlated with IGF-1 and negatively correlated with the age of individuals. IGF-1 was positively correlated with body mass index.

Alessio Fasano and Debra Counts, from the University of Maryland Medical Center in Baltimore, USA, comment in an editorial accompanying the study.

They write: “Given the strong association of CD with other autoimmune disease, including autoimmune endocrine disease, these authors’ findings show one possible etiology for the poor growth seen in children with CD.”

MedWire (www.medwire-news.md) is an independent clinical news service provided by Current Medicine Group, a trading division of Springer Healthcare Limited. © Springer Healthcare Ltd; 2010

 

Easy Recipe – Meringue Cookies April 12, 2010

Filed under: Dairy Free,Recipes,Treats — celiacmama @ 5:31 pm

This is a super easy recipe that makes great cookies that are both dairy and gluten free.  And, since they are not normally made with anything containing dairy or gluten, they are perfect!  (I have found that sometimes substituting ingredients to make recipes dairy or gluten free make them taste a bit off…)

Ingredients:

  • 4 egg whites (or you can use pasteurized liquid egg whites in the carton)
  • 1 cup of sugar (I sometimes use about 3/4 cup of sugar to make them not quite as sweet)
  • 1 tsp gluten free Vanilla
  • Optional – a few drops of food coloring to make them colorful!

Preheat oven to 230°F.  Beat egg whites in a bowl until they are foamy.  Gradually add sugar and beat until stiff peaks form.  Optional: add food coloring.  Spoon small dollops onto a baking sheet lined with parchment paper.  Bake for 45 minutes to one hour or until the cookies start to turn golden.  Note – if you do not bake them all the way, they will turn soggy when storing them.

When I make these the next time, I am going to try adding some orange extract to them.  I will let you know how they turn out!

 

Illegal Pete’s Restaurant

Filed under: Restaurants — celiacmama @ 12:45 am

Today we had lunch at Illegal Pete’s.  It was a gorgeous day, so we were able to sit outside!  Little Boo and I shared the vegetable soft tacos with soft corn tortillas, rice, and black beans.  Delicious!

 

Recipe – GF Chex Caramel Corn April 9, 2010

Filed under: Dairy Free,Recipes,Snacks,Treats — celiacmama @ 5:11 am

This one I got from Caramel Chex Corn.

This is DELICIOUS and my girls all love it.  And, you can make it dairy free as well by switching out the butter for a dairy free substitute.  (I tried Earth Balance Buttery Spread and it was great!)  I make sure I do gluten-free vanilla.  And, if I do it dairy free as well, I check the microwave popcorn ingredients. For a special treat, I let Little Boo have the caramel chex, but not the popcorn or peanuts.